Wednesday, July 21, 2010

The Depression Factor.

It is a known fact that people with RSD commonly get depression.  I'm really starting to understand why. 
It is not just the pain the is frustrating, or the inability to do things I once could... I'm starting to adapt as the days go by.  I admit, the exhaustion does take it's toll on me.  I love to go for walks, and just walking around the block makes me my body need to crash.
There have also been the days that I haven't been able to go out and help in the yard or around the house.  Some might think, 'yeah, a free pass,' but when you feel like there is no order in your life, the clutter gets to you, and all you want to do is clean... or at least that is how I have felt. And it is not easy to do with a 2 year old in the home.
The days of isolation aren't so bad, now that I have found a few online support groups to talk to.  That is what is great about today's 'Modern Age'.  One can get all the company they need from the comfort of their home.  It also helps when riding in the car kills your bottom, and other parts of your anatomy.
No, I think the one thing that has depressed me the most is the fact that the doctor's don't listen to me, or do not take my pain seriously.  When I pick up my medication, the pharm techs look at me like some kind of drug addict.  It depresses me that I have become the 'fax machine' between four different doctors, because they're too busy on vacation to communicate with one another.
I am depressed because there are days when I feel like aspects of RSD are going to consume my life, because a doctor didn't care.
I have had hypo tension so bad for a month now that my GP is worried I might faint, but he doesn't know what to do, besides take me off one of the meds that my psychologist and neurologist started me on 2 months ago. He didn't consult them, however.  He also doesn't believe that RSD is a type of Chronic Regional Pain Syndrome.
I have been in the ER twice now because of two other doctors' "mistakes".

I am losing faith in the medical community.  I am becoming depressed.

RSD Support Groups-
Reflex Sympathetic Dystrophy Support
Coffee House, Motion Parent's Group, Grown Up's Support Group
and the are a few on Facebook.


  1. I both live the "RSD" life and I am happy to see that I am not the only one who has opted to write about her experience with the condition. I have just added myself as a follower just like you have done on mine.

    I definitely understand what you are going through. Please keep writing and I'll keep reading.

  2. Me too! I have finally taken the plunge and tried to write about the frustration as well. I'm with Alexia, keep on writing - I'm with you all the way!