This is my last post for now.

I have been very persistent with my medical team, as inconsistent they may have been with me.  I met with the new pain team in Springfield yesterday.  My thoughts- finally we can move on, and begin a treatment plan with the RSD in my leg. After what has seemed like an eternity since I first started to feel symptoms in my ankle and rear, I was going to have the start of a treatment plan.
Little did I know how disappointed I was about to become.
The intern walked into the room, with my medical records in hand.  My latest MRI and X-Rays had shown that there was nothing wrong with my lower back, with the exception of spondylolisthesis in my L5 and SI, from which I was diagnosed with as a teenager.  She leaned over, and began to tell me that my records indicated I showed nothing significant that would cause my pain.  She then told me I had only one of the 'factors' that would indicate that would indicate CRPS,or RSD.  And have been the end of the appointment....
But I broke down.  My left ankle was significantly colder than the right. I can't fake that, and I was getting that feeling that she just thought I was there to get more medication, or attention.  I asked her just to touch my ankle... and then I begged her. I was crying.  I told her I didn't care what she called it, that I was in pain, and that all I want is some kind of relief, and that I am tired of doctor after doctor just dismissing me and passing me off to the next one, because they aren't sure what to do, or piling on another drug, and thinking that is all they need to do.
She left the room, so I could change into a gown, and did an examination of my leg and arm.  She seemed dumbfounded, and told me she was paging one of the heads of the pain center.

15 minutes later, a tall, older gentlemen,with a calm, gentle face entered the room.  Head did a thorough   head to toe exam of my entire body, just asking what just gentle brushing my skin, asking if it felt fine, tickle or felt 'yucky', and then ask were the sensation started and stopped.  It was the first time a doctor had asked me that, in the 8 years I have been in this pain.
Afterward, he proceeded to tell me he believed I had a real problem, but it was not RSD.  He is not certain what it is yet.  It is some type of neoropathy.  He also believes I am on too much medication.
A plan has been put in place so he can consult with my pain management team back home.  I am also going to see a pain psychiatrist (for the first time).

It is a lot to swallow.  I have spent the past few months researching and preparing to live with RSD.  I was coming to piece with it.  I have met many nice people on support groups... and now I feel like my world has been shaken, and the lights have been turned off.
Living with any pain of illness,and not knowing what to call it is scary, at least for me.  Now to start the process all over again... and perhaps in the future I may start a new journal.

If you think you are not receiving the care you deserve from a doctor, get a second opinion- and if the staff is treating you any less than human, get their names, and report them to the administration.