When you live with pain, you learn to run on pure adrenaline to get you through the day... or at least that is how my body is coping. I don't do a whole lot, most days. I wake up, have breakfast with my family, take a nap, then get the few things I need to to get done for the day, whether it is running a couple errands, or just checking some messages on the computer. I also have my son to take care of, and as any parent knows, every toddler has there moment. But I get through the day, and I'm sore, but still unable to sleep.
Today, I experienced something I very rarely feel these days. Pure out of breath, barely able to move exhaustion. Even after napping. What changed? I had company, and we ran an errand, and I also pushed myself a little but harder to keep up to her pace- taking her dogs out to play with them, chasing my son around. I sat down half as much I am used too.
Then it hit me like a ton of bricks. The adrenaline was gone, and I was scared and sore... this wasn't a panic attack (I have had those). This felt like I had run 20 miles while carrying 100lbs on my back. The moment I sat down, I was done for.
It has taken my 4 hours and some to start to feel some what normal. I'm still exhausted. I'm not tired, just fatigued. It's days like this I wish I could show the doctor what was going on.... It's days like today that I can't stand the uncertainty. Is this the RSD... no. Is it a result of chronic pain... I highly doubt it. But for now, that is all I have.
My journey and experiences as a young woman just diagnosed with Reflex Sympethetic Dystrophy, or RSD. A mother, daughter, sister, and ones partner. How it not only effects me, but how it effects the people I love, and how the medical world and public treat me.
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