Yesterday was a very bad day.
With RSD, one will have good and bad days.
Saturday was great. My pain level was low, and I pushed myself to do as much as I possibly could. A big mistake.
Yesterday, I was laid up from exhaustion, my leg throbbing and burning. My arm was in unbearable pain. As a result, my fight or flight response was in high gear. My heart felt as if it was going to jump out of my chest, and at times I felt like I couldn't breath.
I still had to be a mom, too. My significant other works all day on Sundays, so it was my sole duty to take care of our 22 month old. I brought him out side to play. I should know by now not to turn your back for one second on your child, but I did to get a start on picking up the yard. Two seconds later, he was down the driveway and headed for the street. With every bit of strength I had in me, I ran after him, forgetting what pain I was in.
I brought him inside, and broke down. For a breif moment, I thought to myself, if I had known I was 'going to be this sick, I would not have had a child, it is not fair to him'. What a terrible thing to feel... to think. But there is truth to that. It isn't fair to him. As much as I love him, what if I wasn't able to catch up to him? I was sick to my stomach with fear. The prospects of my future seemed dire.
But I can not allow thoughts like that consume me. Not now, and not ever. Any parent with a chronic condition needs to remember this- no your child did not ask for 'this'- but neither than you. And it does not, and will never change how much you love you child. Make the best of every day... and that is what I try to do. Make the best of each day- and remember to take care of yourself. Because if you are not feeling good, than you can not give your best...
Some people forget that... even me.
But I digress (as always).
A new 'thing' started last night. I started having a hissing noise in my ears. Only sometimes. I looked it up today, and was surprised to find out it was tinnitus. Can be caused by RSD as shown here.
I have made an appointment with my GP for Weds. I am looking to change my pain mangement doctor to either a new pain management center, or another RSD specialist. They may be an hour our of my way, but I can't keep up with this.
A RSD support group-
Reflex Sympathetic Dystrophy Support Network
Book of the Day
My journey and experiences as a young woman just diagnosed with Reflex Sympethetic Dystrophy, or RSD. A mother, daughter, sister, and ones partner. How it not only effects me, but how it effects the people I love, and how the medical world and public treat me.
Subscribe to:
Post Comments (Atom)
Blog Archive
-
▼
2010
(40)
-
▼
July
(13)
- -A Long Day,Quiet Weekend-
- A Quick Ode To Moms (and Dads)
- Twitter, Customer Service and Plastic Dolls
- No Rest For The Weary
- -Stellate Ganglion Block-
- A Moment... and a Pause.
- Repetition-
- The Depression Factor.
- The Undiscused Female Aspects-
- A Day at a Time.
- Learning to Pace Myself-
- Lack of Resources-
- My story-.
-
▼
July
(13)
No comments:
Post a Comment