Wednesday, April 11, 2012

It's a revolving door?

No. If you are smart and persistent, there is hope. I have found a group of neurosurgeons that think they have found the source of my pain! Or so I hope.
I have tried many medication, and seen many different 'specialists'. One even had the nerve to tell me I didn't have epilepsy, and never had seizures, even though I had document meants and video of them ( video monitor EEG).

So back to the diagnoses- which for anyone who is suffering from anything and doesn't know what it is, is a great relief. I met a team of neurosurgeons, who have a firm belief that my epilepsy is the cause of my central pain. Where the origin of my seizures are created, in the temporal lobe, near the area where our senses are, is creating pain.
It sounds reasonable to me, and I can kill two birds with one stone, if I'm even eligible. I have been undergoing a series of tests that past few months, and still have a few to go. I know brain surgery sounds extreme, but it was explained to me back ten years ago, as an option to control just my seizures, so I have had some time to think on it.

Will it work? That has yet to be seen. Even if it isn't a 100% cure, I could take less medicine, and maybe drive. I could. Get a job, and better take care of my son. We will see.

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